Pancyprian Thalassemia Association

Number of Members | 
1000
Filippo XatziGeorgiou 1, Apt. 5, Acropoli
P.O Box 28503, 2080 Nicosia
22429141 | 22315792
Info@thalassemia.org.cy
MEMBER_OSAK

Organization Goals

General care for those suffering from Thalassemia
Prevention of Thalassemia
Implementing appropriate measures for the effective treatment of Thalassemia
Professional rehabilitation of all Thalassemia patients
Gene Therapy that will bring about Radical Treatment

Main Difficulties

Prohibition order for access to all pharmaceuticals
Poor-quality consumables, problematic single-use desferrioxamine pumps
MRI examinations
DEXA bone density examinations
Non-compliance with the Therapeutic Treatment Protocol

Main Annual Events

Afternoon tea with pastries
Raffle
Fundraising event
Musical event
Fashion show
Bowling
Bazaar
Walkathon for Thalassemia

Participation in National, European, Global Organizations, and Forums

PATP – CyFPA – International Thalassemia Federation – Card (Pan-Cyprian Organiazation for Rear Diseases)