CyFPA

Strategic planning

who

The Federation has defined the following strategic objectives:

Goal 1
Promotion of effective implementation of patients’ rights to facilitate access to quality, equitable medical care, and improve patients’ quality of life.

This addresses issues outlined in critical issue 1.

Goal 2
Empowerment of substantial patient involvement in developing and implementing health-related policies, planning for optimal patient needs management.

This addresses issues outlined in critical issue 2.

Goal 3
Promotion of a strong, effective, and unified patient movement allowing the Federation to represent a strong voice on behalf of all patients in Cyprus.

This addresses issues outlined in critical issues 2 (establishment and empowerment of the Federation) and 3 (capacity of member organizations).

Goal 4
Promotion of patient-centered policies through the development of effective and reliable collaboration among relevant entities.

This will address issues as outlined in all critical issues (reduce biases, bridge diverging opinions, raise awareness within the Health Powerhouse Organization (HCP), and personnel among others about rights).

Goal 5
Promotion and defense of policies to reduce risk factors for chronic diseases and improve public health in Cyprus.

This will address critical issue 4.

This section of the Strategic Plan outlines in general terms the areas of action the Federation will utilize to work towards the strategic objectives as defined in Section 4. These areas of action provide an overview of the work targeting the objectives and will be detailed in the Federation’s Annual Work Plans.

Goal 1
Promoting the effective implementation of patient rights to facilitate access to high-quality, equitable healthcare and improve the patients’ quality of life.

Collecting evidence of the existing legislation’s implementation regarding patients’ rights concerning availability, quality, and equitable access to healthcare. Identifying disparities and inequalities within the system that can be improved. Contributing to identifying solutions to make the healthcare system more sustainable while strengthening quality, safety of healthcare services, and equitable access for all patients.

Goal 2
Empowering meaningful patient involvement in the development and implementation of health-related policies and planning for optimal addressing of patients’ needs.

Creating clear documents outlining positions and perspectives regarding the implementation of the National Health Plan and other relevant health policies in Cyprus that will interest patients. Enhancing patient organizations’ participation in all organized groups, such as the National Health Insurance Organization, governmental bodies, hospitals, pharmaceutical services, medications, and other avenues influencing health policies. Creating advocacy materials based on evidence to inform policy-setting activities and advocacy. Advocating for the establishment of registries and reliable health statistics concerning the population’s health and chronic diseases in Cyprus. Establishing and maintaining partnerships among all healthcare stakeholders and improving communication with the Ministry of Health, the Health Committee of the Parliament, and all policy-setting bodies.

Goal 3
Promoting a strong, effective, and unified patient movement that allows the Federation to have a strong voice on behalf of all patients in Cyprus.

Developing the Federation’s capabilities by developing a fundraising strategy and increasing membership. Improving the Federation’s visibility and creating a communication strategy. Establishing clear roles, procedures, practices, and communication channels for Federation members’ communication. Promoting the Federation as a platform for exchanging ideas, best practices, and creating partnerships among members. Developing organizational capacity among members through training workshops and seminars.

Goal 4
Promoting patient-centered policies through the development of effective and reliable collaboration among relevant stakeholders.

Establishing dialogue channels with healthcare professionals, employees, and other relevant organizations and institutions. Creating educational and informative material on patient rights and other relevant issues, such as a cross-border healthcare directive for patients, healthcare professionals, and intermediaries. Participating in conferences and meetings to strengthen patients’ influence. Creating awareness campaigns and understanding of patient rights among lawmakers and politicians.

Goal 5
Advocating for policies that improve public health and reduce risk factors for chronic diseases.

Supporting actions that interest the general public in collaboration with our members. Advocating for the creation and implementation of comprehensive legislation that addresses risk factors for chronic diseases and population control programs. Raising awareness among legislators and politicians about the value of improved public health policies. Recognizing and facilitating collaborations and partnerships among our members.

Minimal performance indicators for strategic goals

The following performance indicators will be used to evaluate the process:

Goal 1
The Federation achieves the collection of evidence and documentation of case studies for the execution of patients’ rights.

The Federation accomplishes the identification and proposal of solutions that render the healthcare system more sustainable while simultaneously enhancing the quality of healthcare services, safety, and equitable access for all.

Goal 2
Policy documents and opinions generated by the Federation are based on evidence and are utilized by key stakeholders.

The Federation succeeds in influencing policies in a manner that is more favorable for effectively addressing the real needs of patients.

The Federation is capable of establishing and strengthening collaboration among key stakeholders, including the Ministry of Health, the Health Committee in Parliament, and at least one organized group.

Goal 3
The Federation achieves a substantial increase in funding from governmental sources and private donors.

The Federation creates and implements comprehensive mechanisms to promote active exchange of ideas, best practices, collaboration, and effective participation of members in its activities.

The Federation succeeds in enhancing the capacity of its members by organizing at least two organizational development workshops.

Goal 4
The Federation establishes channels for dialogue with healthcare professionals, staff, and other relevant organizations and institutions.

The Federation organizes relevant campaigns based on evidence and informational material for healthcare professionals, patients, intermediaries, and all other relevant stakeholders.

The Federation achieves an increase in awareness of patient rights by organizing at least one conference and participating in at least 1 educational workshop annually.

Goal 5
The Federation facilitates and promotes collaboration among organizations to address risk factors for chronic diseases.

The Federation promotes the understanding and recognition of the value of improved public health policies.

A mechanism for monitoring and evaluating the strategic plan. The strategic plan was approved by the General Assembly on June 16, 2015. The Executive Committee will monitor the degree of success of the performance indicators. The President and Secretary of the Council must also be appointed responsible for monitoring the implementation of the strategic plan.

The Federation Secretariat will develop the annual operational plan of the Strategic Plan. The operational plan will be approved by the Board of Directors. Review and adaptation of the strategic plan will be considered if relevant changes occur in the political, economic, and social environment that affects the organization. Recommendations in this regard may come from the Secretariat, be discussed participatively by the Board of Directors, and approved by the General Assembly.

Our Members

1. Cyprus League of People with Rheumatism (CYLPER)

2. Association of Parents & Friends of Children with Heart Disease

3. Cyprus Association of Cancer Patients and Friends (PASYKAF)

4. Cyprus Thalassaemia Association ‘ZOE’

5. The Cyprus anti-cancer society

6. Europa Donna Cyprus

7. Cyprus Multiple Sclerosis Association

8. Cyprus Diabetic Association

9. Cyprus Cardiac Patients Association

10. Cyprus Transplant Association

11. Pancyprian Thalassemia Association

12. Pancyprian Association of Friends of Kidney Patients

13. Association for People with Autism

14. Pan-Cypriot Association for Colitis and Crohn’s Disease

15. Cyprus Pulmonary Association

16. Familial Amyloid Polyneuropathy Association

17. Pancyprian organization of people with kidney disorders

18. Cyprus Association of Friends and Individuals with Brain Tumors

19. Cyprus Hepatitis Patients and Friends Association ‘Prometheus’

20. Cyprus Alliance for Rare Disorders

21. Europa UOMO Cyprus

22. Cyprus Myopathy Association

23. The Cyprus Coeliac Association

24. Pan-Cyprian Association for Rare Genetic Diseases ‘Unique Smiles’

25. Pan-Cyprian Association Elpidoforos

26. Cyprus Paraplegics Organization

27. Pan-Cyprian Association of Parents and Friends of the Pediatric Oncology Unit

28. Ithaki Charity Organization

29. Cyprus Stroke Association

30. Association for inherited metabolic diseases “ASPIDA ZOIS”

31. Pan-Cyprian Association of Alzheimer’s and Related Disorders ‘Mi me lismonei’

32. ADD and ADHD Cyprus

33. Down Syndrome Cyprus

34. Pan-Cyprian Association of Sickle Cell Disease and Thalassemia

35. Myasthenia Gravis

36. Ena oneiro mia evxi

Associated Members:

1. Birth Forward

2. Association «Mora Thavmata»

3. Cyprus Breastfeeding Association

4. Christina Apostolou Foundation

 

Executive committee

POSITION NAME SURNAME ASSOCIATION MEMBER OF CyFPA
President Pambos Papadopoulos Cyprus Myopathy Association
Vice President Stella Elevtheriadou Association of Parents & Friends of Children with Heart Disease
Secretary Marios Charalambides Europa Donna
Assistant Secretary Despoina Rousou Cyprus Multiple Sclerosis Association
Treasurer DemetrisGenethli Familial Amyloid Polyneuropathy Association
Assistant Treasurer Miltos  Miltiadous Cyprus Thalassaemia Association
Press Spokesperson Demetris Lambrianides Cyprus Paraplegics Organization
Ex-officio Marios Vakanas Association for inherited metabolic diseases “ASPIDA ZOIS”
Ex-officio Andonis Tryfonos Cyprus Association of Cancer Patients and Friends (PASYKAF)

Board of Directors

POSITION FULL NAME ASSOCIATION MEMBER OF CyFPA
President Pambos Papadopoulos Cyprus Myopathy Association
Vice President Stela  Elevtheriadou Association of Parents & Friends of Children with Heart Disease
Secretary Marios Charalampides Europa Donna Cyprus
Treasurer Demetris Genethli
Familial Amyloid Polyneuropathy Association
Deputy Secretary Despoina Rousou Cyprus Multiple Sclerosis Association
Deputy Treasurer Miltos Miltiadous Cyprus Thalassaemia Association
Press Spokesperson Demetris Lamprianides Cyprus Paraplegics Organization
Deputy Member Evtixios Kafataris Cyprus Multiple Sclerosis Association
Deputy Member Andreas Loizias Cyprus Thalassaemia Association
Deputy Member Xenia Paatsalidou Association of Parents & Friends of Children with Heart Disease
Deputy Member Annita Evgeniou 
Familial Amyloid Polyneuropathy Association
Member Keti Kelogrigori Cyprus Thalassaemia Association ‘ZOE’
Deputy Member Maria Papapetrou Cyprus Thalassaemia Association ‘ZOE’
Member Maria Ioannidou The Cyprus anti-cancer society
Deputy Member Nikoletta Athanasiadou The Cyprus anti-cancer society
Deputy Member Louiza Poly Europa Donna Cyprus
Member Andonakis Mavrides Cyprus Diabetic Association
Deputy Member Andreas Papoulas Cyprus Diabetic Association
Member Stelios Christodoulou Cyprus Cardiac Patients Association
Deputy Member Chrysanthos Chrysanthou Cyprus Cardiac Patients Association
Member Andonis Andoniou Cyprus Transplant Association
Deputy Member Sotiris Kleanthous Cyprus Transplant Association
Member Souzi Makri Cyprus League of People with Rheumatism (CYLPER)
Deputy Member Andri Foka Cyprus League of People with Rheumatism (CYLPER)
Member Theodora Vasileiou Pancyprian Association of Friends of Kidney Patients
Deputy Member Kyriaki Makri Pancyprian Association of Friends of Kidney Patients
Member Katerina Onisiforou Ioannou Association for People with Autism
Deputy Member Christina Tryfonos Association for People with Autism
Member Simos Katsouris Pan-Cypriot Association for Colitis and Crohn’s Disease
Deputy Member Spyroula Mavrommati Pan-Cypriot Association for Colitis and Crohn’s Disease
Member Pola Christofidou Cyprus Alliance for Rare Disorders
Deputy Member Maria Caralampous Cyprus Alliance for Rare Disorders
Member Miranda Chrysostomou Cyprus Association of Cancer Patients and Friends (PASYKAF)
Deputy Member Antonis Tryfonos Cyprus Association of Cancer Patients and Friends (PASYKAF)
Member Emily Groutidou Petridou Pancyprian organization of people with kidney disorders
Deputy Member Giorgos Mesaritis Pancyprian organization of people with kidney disorders
Member Maria Christodoulou Cyprus Pulmonary Association
Deputy Member Andriani Tandele Cyprus Pulmonary Association
Member Maria Solomou Cyprus Association of Friends and Individuals with Brain Tumors
Deputy Member Maria Kyriakou Cyprus Association of Friends and Individuals with Brain Tumors
Member Michalis Theodorou Cyprus Hepatitis Patients and Friends Association ‘Prometheus’
Deputy Member Gianoulla Koulla Cyprus Hepatitis Patients and Friends Association ‘Prometheus’
Member Giannos Giorgalis

Europa UOMO Cyprus

Deputy Member Savvas Iliofotou Europa UOMO Cyprus
Deputy Member Panagiotis Voskos Cyprus Myopathy Association
Member Panagiota Xatzisimou The Cyprus Coeliac Association
Deputy Member Elena Tsielepi The Cyprus Coeliac Association
Member Xenofon Ioannides Pan-Cyprian Association Elpidoforos
Member Martha Polyraki Pan-Cyprian Association Elpidoforos
Member Stalo Kyriakidou Pan-Cyprian Association for Rare Genetic Diseases ‘Unique Smiles’
Deputy Member Katia Kyriakou Pan-Cyprian Association for Rare Genetic Diseases ‘Unique Smiles’
Deputy Member Katerina Panagiotou Cyprus Paraplegics Organization
Member Louiza Stefanidou Pan-Cyprian Association of Parents and Friends of the Pediatric Oncology Unit
Deputy Member Eleni Anastasiou Pan-Cyprian Association of Parents and Friends of the Pediatric Oncology Unit
Member Elena Megalemou Triandafilide Association «Mora Thavmata»
Deputy Member Giannos Pirisiis Association «Mora Thavmata»
Member Isavella Karaoli Ithaki Charity Organization
Deputy Member Ioanna Koundouri Ithaki Charity Organization
Member Marina Charalampous Cyprus Stroke Association
Deputy Member Alexia Koundouri Cyprus Stroke Association
Member Marios Vakanas Association for inherited metabolic diseases “ASPIDA ZOIS”
Deputy Member Vaso Tikkou Association for inherited metabolic diseases “ASPIDA ZOIS”
Member Andigoni Diakou Pan-Cyprian Association of Alzheimer’s and Related Disorders ‘Mi me lismonei’
Deputy Member Alexandra Achilleos Pan-Cyprian Association of Alzheimer’s and Related Disorders ‘Mi me lismonei’
Member Marina Georgiou

ADD and ADHD Cyprus

Deputy Member Popi Xanthou

ADD and ADHD Cyprus

Member Stylianos Theodorou

Down Syndrome Cyprus

Deputy Member Aggelos Constandinides

Down Syndrome Cyprus

Member Nicolas Lazarou

Pan-Cyprian Association of Sickle Cell Disease and Thalassemia

Deputy Member Tasoula Mandidou

Pan-Cyprian Association of Sickle Cell Disease and Thalassemia

Member Giota Doukanari

Birth Forward

Deputy Member Demetra Tsagkaraki

Birth Forward

Member Andonis Gavrielides

Myasthenia Gravis

Deputy Member Marios Demetriou

Myasthenia Gravis

Member Giorgos Penindaex

Ena oneiro mia evxi

Deputy Member Maro Xatzichristofi

Ena oneiro mia evxi

Member Andreas A. Apostolou

Christina A. Apostolou Institution

Deputy Member Apostolos X. Apostolou

Christina A. Apostolou Institution

Member Eirini Pafiti

Cyprus Breastfeeding Association

Deputy Member Ourania Kolokotroni

Cyprus Breastfeeding Association