CyFPA

Strategic planning

who

The Federation has defined the following strategic objectives:

Goal 1
Promotion of effective implementation of patients’ rights to facilitate access to quality, equitable medical care, and improve patients’ quality of life.

This addresses issues outlined in critical issue 1.

Goal 2
Empowerment of substantial patient involvement in developing and implementing health-related policies, planning for optimal patient needs management.

This addresses issues outlined in critical issue 2.

Goal 3
Promotion of a strong, effective, and unified patient movement allowing the Federation to represent a strong voice on behalf of all patients in Cyprus.

This addresses issues outlined in critical issues 2 (establishment and empowerment of the Federation) and 3 (capacity of member organizations).

Goal 4
Promotion of patient-centered policies through the development of effective and reliable collaboration among relevant entities.

This will address issues as outlined in all critical issues (reduce biases, bridge diverging opinions, raise awareness within the Health Powerhouse Organization (HCP), and personnel among others about rights).

Goal 5
Promotion and defense of policies to reduce risk factors for chronic diseases and improve public health in Cyprus.

This will address critical issue 4.

This section of the Strategic Plan outlines in general terms the areas of action the Federation will utilize to work towards the strategic objectives as defined in Section 4. These areas of action provide an overview of the work targeting the objectives and will be detailed in the Federation’s Annual Work Plans.

Goal 1
Promoting the effective implementation of patient rights to facilitate access to high-quality, equitable healthcare and improve the patients’ quality of life.

Collecting evidence of the existing legislation’s implementation regarding patients’ rights concerning availability, quality, and equitable access to healthcare. Identifying disparities and inequalities within the system that can be improved. Contributing to identifying solutions to make the healthcare system more sustainable while strengthening quality, safety of healthcare services, and equitable access for all patients.

Goal 2
Empowering meaningful patient involvement in the development and implementation of health-related policies and planning for optimal addressing of patients’ needs.

Creating clear documents outlining positions and perspectives regarding the implementation of the National Health Plan and other relevant health policies in Cyprus that will interest patients. Enhancing patient organizations’ participation in all organized groups, such as the National Health Insurance Organization, governmental bodies, hospitals, pharmaceutical services, medications, and other avenues influencing health policies. Creating advocacy materials based on evidence to inform policy-setting activities and advocacy. Advocating for the establishment of registries and reliable health statistics concerning the population’s health and chronic diseases in Cyprus. Establishing and maintaining partnerships among all healthcare stakeholders and improving communication with the Ministry of Health, the Health Committee of the Parliament, and all policy-setting bodies.

Goal 3
Promoting a strong, effective, and unified patient movement that allows the Federation to have a strong voice on behalf of all patients in Cyprus.

Developing the Federation’s capabilities by developing a fundraising strategy and increasing membership. Improving the Federation’s visibility and creating a communication strategy. Establishing clear roles, procedures, practices, and communication channels for Federation members’ communication. Promoting the Federation as a platform for exchanging ideas, best practices, and creating partnerships among members. Developing organizational capacity among members through training workshops and seminars.

Goal 4
Promoting patient-centered policies through the development of effective and reliable collaboration among relevant stakeholders.

Establishing dialogue channels with healthcare professionals, employees, and other relevant organizations and institutions. Creating educational and informative material on patient rights and other relevant issues, such as a cross-border healthcare directive for patients, healthcare professionals, and intermediaries. Participating in conferences and meetings to strengthen patients’ influence. Creating awareness campaigns and understanding of patient rights among lawmakers and politicians.

Goal 5
Advocating for policies that improve public health and reduce risk factors for chronic diseases.

Supporting actions that interest the general public in collaboration with our members. Advocating for the creation and implementation of comprehensive legislation that addresses risk factors for chronic diseases and population control programs. Raising awareness among legislators and politicians about the value of improved public health policies. Recognizing and facilitating collaborations and partnerships among our members.

Minimal performance indicators for strategic goals

The following performance indicators will be used to evaluate the process:

Goal 1
The Federation achieves the collection of evidence and documentation of case studies for the execution of patients’ rights.

The Federation accomplishes the identification and proposal of solutions that render the healthcare system more sustainable while simultaneously enhancing the quality of healthcare services, safety, and equitable access for all.

Goal 2
Policy documents and opinions generated by the Federation are based on evidence and are utilized by key stakeholders.

The Federation succeeds in influencing policies in a manner that is more favorable for effectively addressing the real needs of patients.

The Federation is capable of establishing and strengthening collaboration among key stakeholders, including the Ministry of Health, the Health Committee in Parliament, and at least one organized group.

Goal 3
The Federation achieves a substantial increase in funding from governmental sources and private donors.

The Federation creates and implements comprehensive mechanisms to promote active exchange of ideas, best practices, collaboration, and effective participation of members in its activities.

The Federation succeeds in enhancing the capacity of its members by organizing at least two organizational development workshops.

Goal 4
The Federation establishes channels for dialogue with healthcare professionals, staff, and other relevant organizations and institutions.

The Federation organizes relevant campaigns based on evidence and informational material for healthcare professionals, patients, intermediaries, and all other relevant stakeholders.

The Federation achieves an increase in awareness of patient rights by organizing at least one conference and participating in at least 1 educational workshop annually.

Goal 5
The Federation facilitates and promotes collaboration among organizations to address risk factors for chronic diseases.

The Federation promotes the understanding and recognition of the value of improved public health policies.

A mechanism for monitoring and evaluating the strategic plan. The strategic plan was approved by the General Assembly on June 16, 2015. The Executive Committee will monitor the degree of success of the performance indicators. The President and Secretary of the Council must also be appointed responsible for monitoring the implementation of the strategic plan.

The Federation Secretariat will develop the annual operational plan of the Strategic Plan. The operational plan will be approved by the Board of Directors. Review and adaptation of the strategic plan will be considered if relevant changes occur in the political, economic, and social environment that affects the organization. Recommendations in this regard may come from the Secretariat, be discussed participatively by the Board of Directors, and approved by the General Assembly.

Our Members

1. Cyprus League of People with Rheumatism (CYLPER)

2. Association of Parents & Friends of Children with Heart Disease

3. Cyprus Association of Cancer Patients and Friends (PASYKAF)

4. Cyprus Thalassaemia Association ‘ZOE’

5. The Cyprus anti-cancer society

6. Europa Donna Cyprus

7. Cyprus Multiple Sclerosis Association

8. Cyprus Diabetic Association

9. Cyprus Cardiac Patients Association

10. Cyprus Transplant Association

11. Pancyprian Thalassemia Association

12. Pancyprian Association of Friends of Kidney Patients

13. Association for People with Autism

14. Pan-Cypriot Association for Colitis and Crohn’s Disease

15. Cyprus Pulmonary Association

16. Familial Amyloid Polyneuropathy Association

17. Pancyprian organization of people with kidney disorders

18. Cyprus Association of Friends and Individuals with Brain Tumors

19. Cyprus Hepatitis Patients and Friends Association ‘Prometheus’

20. Cyprus Alliance for Rare Disorders

21. Europa UOMO Cyprus

22. Cyprus Myopathy Association

23. The Cyprus Coeliac Association

24. Pan-Cyprian Association for Rare Genetic Diseases ‘Unique Smiles’

25. Pan-Cyprian Association Elpidoforos

26. Cyprus Paraplegics Organization

27. Pan-Cyprian Association of Parents and Friends of the Pediatric Oncology Unit

28. Pan-Cyprian Organization of Parents and Friends of Children with Brain and Other Paralyses ‘Agkalia Elpidas’

29. Ithaki Charity Organization

30. Cyprus Stroke Association

31. Association for inherited metabolic diseases “ASPIDA ZOIS”

32. Pan-Cyprian Association of Alzheimer’s and Related Disorders ‘Mi me lismonei’

33. ADD and ADHD Cyprus

34. Down Syndrome Cyprus

35. Pan-Cyprian Association of Sickle Cell Disease and Thalassemia

36. Myasthenia Gravis

37. Ena oneiro mia evxi

Associated Members:

1. Birth Forward

2. Association «Mora Thavmata»

3. Cyprus Breastfeeding Association

 

Executive committee

POSITIONNAMESURNAMEASSOCIATION MEMBER OF CyFPA
PresidentPambosPapadopoulosCyprus Myopathy Association
Vice PresidentStellaElevtheriadouAssociation of Parents & Friends of Children with Heart Disease
SecretaryMariosCharalambidesEuropa Donna
Assistant SecretaryDespoinaRousouCyprus Multiple Sclerosis Association
TreasurerMirandaChrysostomouCyprus Association of Cancer Patients and Friends (PASYKAF)
Assistant TreasurerMiltos MiltiadousCyprus Thalassaemia Association
Press SpokespersonDemetrisLambrianidesCyprus Paraplegics Organization
Ex-officioMariosVakanasAssociation for inherited metabolic diseases “ASPIDA ZOIS”
Ex-officioAndonisTryfonosCyprus Association of Cancer Patients and Friends (PASYKAF)

Board of Directors

POSITIONFULL NAMEASSOCIATION MEMBER OF CyFPA
PresidentPambos PapadopoulosCyprus Myopathy Association
Vice PresidentStela  ElevtheriadouAssociation of Parents & Friends of Children with Heart Disease
SecretaryMarios CharalampidesEuropa Donna Cyprus
TreasurerMiranda ChrysostomouCyprus Association of Cancer Patients and Friends (PASYKAF)
Deputy SecretaryDespoina RousouCyprus Multiple Sclerosis Association
Deputy TreasurerMiltos MiltiadousCyprus Thalassaemia Association
Press SpokespersonDemetris LamprianidesCyprus Paraplegics Organization
Deputy MemberEvtixios KafatarisCyprus Multiple Sclerosis Association
Deputy MemberAndreas LoiziasCyprus Thalassaemia Association
Deputy MemberXenia PaatsalidouAssociation of Parents & Friends of Children with Heart Disease
Deputy MemberAndonis TryfonosCyprus Association of Cancer Patients and Friends (PASYKAF)
MemberKeti KelogrigoriCyprus Thalassaemia Association ‘ZOE’
Deputy MemberMaria PapapetrouCyprus Thalassaemia Association ‘ZOE’
MemberMaria IoannidouThe Cyprus anti-cancer society
Deputy MemberNikoletta AthanasiadouThe Cyprus anti-cancer society
Deputy MemberLouiza PolyEuropa Donna Cyprus
MemberAndonakis MavridesCyprus Diabetic Association
Deputy MemberAndreas PapoulasCyprus Diabetic Association
MemberStelios ChristodoulouCyprus Cardiac Patients Association
Deputy MemberChrysanthos ChrysanthouCyprus Cardiac Patients Association
MemberAndonis AndoniouCyprus Transplant Association
Deputy MemberSotiris KleanthousCyprus Transplant Association
MemberSouzi MakriCyprus League of People with Rheumatism (CYLPER)
Deputy MemberAndri FokaCyprus League of People with Rheumatism (CYLPER)
MemberTheodora VasileiouPancyprian Association of Friends of Kidney Patients
Deputy MemberKyriaki MakriPancyprian Association of Friends of Kidney Patients
MemberKaterina Onisiforou IoannouAssociation for People with Autism
Deputy MemberChristina TryfonosAssociation for People with Autism
MemberSimos KatsourisPan-Cypriot Association for Colitis and Crohn’s Disease
Deputy MemberSpyroula MavrommatiPan-Cypriot Association for Colitis and Crohn’s Disease
MemberPola ChristofidouCyprus Alliance for Rare Disorders
Deputy MemberMaria CaralampousCyprus Alliance for Rare Disorders
MemberDemetris GenethliFamilial Amyloid Polyneuropathy Association
Deputy MemberAnnita EvgeniouFamilial Amyloid Polyneuropathy Association
MemberEmily Groutidou PetridouPancyprian organization of people with kidney disorders
Deputy MemberGiorgos MesaritisPancyprian organization of people with kidney disorders
MemberMaria ChristodoulouCyprus Pulmonary Association
Deputy MemberAndriani TandeleCyprus Pulmonary Association
MemberMaria SolomouCyprus Association of Friends and Individuals with Brain Tumors
Deputy MemberMaria KyriakouCyprus Association of Friends and Individuals with Brain Tumors
MemberMichalis TheodorouCyprus Hepatitis Patients and Friends Association ‘Prometheus’
Deputy MemberGianoulla KoullaCyprus Hepatitis Patients and Friends Association ‘Prometheus’
MemberGiannos Giorgalis

 Europa Uomo

Deputy MemberSavvas IliofotouEuropa Uomo
Deputy MemberPanagiotis VoskosCyprus Myopathy Association
MemberPanagiota XatzisimouThe Cyprus Coeliac Association
Deputy MemberElena TsielepiThe Cyprus Coeliac Association
MemberXenofon IoannidesPan-Cyprian Association Elpidoforos
MemberMartha PolyrakiPan-Cyprian Association Elpidoforos
MemberStalo KyriakidouPan-Cyprian Association for Rare Genetic Diseases ‘Unique Smiles’
Deputy MemberKatia KyriakouPan-Cyprian Association for Rare Genetic Diseases ‘Unique Smiles’
Deputy MemberKaterina PanagiotouCyprus Paraplegics Organization
MemberLouiza StefanidouPan-Cyprian Association of Parents and Friends of the Pediatric Oncology Unit
Deputy MemberEleni AnastasiouPan-Cyprian Association of Parents and Friends of the Pediatric Oncology Unit
MemberElena Megalemou TriandafilideAssociation «Mora Thavmata»
Deputy MemberGiannos PirisiisAssociation «Mora Thavmata»
MemberIsavella KaraoliIthaki Charity Organization
Deputy MemberIoanna KoundouriIthaki Charity Organization
MemberMarina CharalampousCyprus Stroke Association
Deputy MemberAlexia KoundouriCyprus Stroke Association
MemberMarios VakanasAssociation for inherited metabolic diseases “ASPIDA ZOIS”
Deputy MemberVaso TikkouAssociation for inherited metabolic diseases “ASPIDA ZOIS”
MemberAndigoni DiakouPan-Cyprian Association of Alzheimer’s and Related Disorders ‘Mi me lismonei’
Deputy MemberAlexandra AchilleosPan-Cyprian Association of Alzheimer’s and Related Disorders ‘Mi me lismonei’
MemberMarina Georgiou

ADD and ADHD Cyprus

Deputy MemberPopi Xanthou

ADD and ADHD Cyprus

MemberStylianos Theodorou

Down Syndrome Cyprus

Deputy MemberAggelos Constandinides

Down Syndrome Cyprus

MemberNicolas Lazarou

Pan-Cyprian Association of Sickle Cell Disease and Thalassemia

Deputy MemberTasoula Mandidou

Pan-Cyprian Association of Sickle Cell Disease and Thalassemia

MemberGiota Doukanari

Birth Forward

Deputy MemberDemetra Tsagkaraki

Birth Forward

MemberAndonis Gavrielides

Myasthenia Gravis

Deputy MemberMarios Demetriou

Myasthenia Gravis

MemberGiorgos Penindaex

Ena oneiro mia evxi

Deputy MemberMaro Xatzichristofi

Ena oneiro mia evxi

MemberAndreas A. Apostolou

Christina A. Apostolou Institution

Deputy MemberApostolos X. Apostolou

Christina A. Apostolou Institution

MemberEirini Pafiti

Cyprus Breastfeeding Association

Deputy MemberOurania Kolokotroni

Cyprus Breastfeeding Association

 

Employees

POSITIONNAMESURNAME
Director of OperationsAndreasChristodoulou
Legal OfficerMichaelaMarkou
Social Services & Program OfficerElenaCharalambous